Supporting Children with CCHS: Max’s 1500 km Cycle Challenge

Photo of two men in cycling gear


Good luck to Max Edgington, a Senior Medical Writer at Porterhouse, and his flatmate are embarking on to raise funds for children with Congenital Central Hypoventilation Syndrome (CCHS). This rare genetic condition causes individuals to experience hypoventilation while sleeping, making their nights a struggle for survival.

The Challenge

Starting this Saturday (15 June), Max and his friend’s mission is to cycle unsupported from London to Monaco. This journey will cover approximately 1500 kilometres over the course of 12 days.

The Objective

The objective of the challenge is to raise money for ‘Keep Me Breathing,’ a charity founded by a friend whose 2-year-old son, Casper, suffers from CCHS. Casper’s story is a poignant reminder of why we are doing this. You can learn more about Casper’s daily challenges and watch a short video about him here: Casper’s Story.

The Goal

The ultimate aim of the challenge is to support ‘Keep Me Breathing’ in their ground-breaking work. The charity is collaborating with over 130 medical professionals and has partnered with Cambridge University to develop the first treatment specifically designed for CCHS—a breathing pacemaker. This innovative device holds the potential to transform lives by providing a reliable solution to those affected by this condition.

For more information on this important work, please visit Keep Me Breathing’s website.

Porterhouse is proud to support Max and his friend on this great cause, and invite you to join them on their journey, whether through donations, spreading the word, or simply following their progress. If you would like to make a donation, their fundraising link is here:

Together, we can make a significant impact and bring hope to children like Casper who battle CCHS every day. Thank you for your support!