News & Views: Tag: Rare diseases
We are delighted to congratulate Suzanne on her well-deserved promotion, and welcome her to the Porterhouse Medical Advisory Group.
Porterhouse Medical looks at some of the opportunities and challenges presented by the rare disease market, and how successfully navigating the space requires a different approach to medical communications.
Shockingly, one baby is diagnosed with an MPS or related disease every eight days in the UK and there is currently no cure. To help raise awareness of MPS, our article looks at some facts about, and symptoms of the disease.
To help raise awareness for Rare Disease Day, our intern interviewed Debbie, the office manager at Porterhouse Medical, on what it’s like to live with a rare disease.
The Porterhouse team made us proud by ‘wearing jeans to change lives’ on Jeans for Genes Day last Friday.
On the last day of February each year, countries worldwide take part in Rare Disease Day to raise awareness of a diverse group of disorders that affect fewer than 1 in 2,000 people in Europe or fewer than 200,000 people in the USA.