Rare disease day 2024
29 February 2024
Rare Disease Day 2024: A spotlight on lysosomal storage disorders

  What is Rare Disease Day? Rare Disease Day represents the global movement aiming to improve equity in healthcare, social opportunity, and diagnostic and therapeutic access for the estimated 300 million people living with a rare disease worldwide [1]. Celebrated on the last day of February each year (the rarest day for leap years, such …

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27 February 2023
Rare Disease Day: The Importance of Co-ordinated Care

  28 February is Rare Disease Day – a day dedicated to raising awareness and making a positive impact of 300 million + people worldwide living with a rare disease, and those who care for them. The theme for 2023 focuses on the importance of well-coordinated care and how it can make a real difference …

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